Personal health data cannot be publicly shared, however, high-level metadata describing the data collected can be shared, along with information on how to access the data.
NFDI4Health has developed a generic information model to describe and preserve high-level metadata describing health-related studies. The resulting modular study metadata schema (MDS) covers clinical, epidemiological and public health studies, and includes data access and sharing options (learn more).
As an infrastructure for publishing such preservation metadata, NFDI4Health has developed the German Central Health Study Hub (learn more) and the Local Data Hub (learn more).